Let the round of doctors begin again…

After the NIH visit, it seemed like we slowed down quite a bit when it came to seeing doctors. After all, they did do almost every test in the book! But now it is time to follow up on their findings and get some answers… This doesn’t include Hannah’s therapies that are currently 3 times […]

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Little Miss Navigator (video)

I can completely understand why the professionals see “scattered skills” in Hannah.  In some respects, she definitely acts a few months younger in terms of what she understands and what she does.  With the exception of saying “you want uppies?”, she never really seems to understand what we are asking of her and just smiles.  […]

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Therapy does work

We finally had a great OT day yesterday!  For the two weeks prior, Hannah would just see Pat, our OT, and she would break into tears.  Up until that point, we had worked on only feeding-related exercises.  Last week, we decided that we would avoid feeding-related therapy for a few weeks and concentrate on fine […]

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She needs to be able to breathe

Hannah hasn’t been herself the last few days, actually, more like the last couple of weeks.  I think part of it had to do with the stomach bug that I had that she probably caught, but she just hasn’t been the always smiling and happy baby lately.  We had another hyperventilation episode on the way […]

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DAYC Summary, 12 months…at least she is still happy!

Four months went by so fast from Hannah’s 8-month DAYC summary testing. Here are the results for Hannah’s Developmental Assessment of Young Children Summary from Early Childhood Intervention done Friday.  Basically, they “test” her on certain behaviors, abilities, etc., and they asked me a lot of questions on what she can/can’t do at this age and also […]

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Good people

I feel so lucky to have so many good people in my life.  After my vent the other day, I have received such an wonderful outpouring of hugs and suggestions.   This is why I share my heart here.   I couldn’t even begin to list everyone because I would be afraid of not being able to […]

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