For the last few years, Genzyme (the company that makes Cerezyme) has had a team run in the Boston Marathon. Each runner pairs up with a Genzyme patient to help raise awareness for rare diseases. Hannah was matched with Mandy in 2010 and Kristin in 2011.
When I got the call last week that Hannah was chosen to be matched with a runner this year, I was overwhelmed. It means so much to me that even though she has been gone for more than a year that her impact in the world of Gaucher’s Disease is still just as strong.
Lisa V, we will be cheering you and your flower skirt on (and we can’t wait for pictures!).