Abby was 4 years old when Hannah was born. A few months before Hannah was born, it was time to prune Abby’s wardrobe and take out all the clothes that didn’t fit her anymore. Usually we donate them, but we knew that I was having a girl so we put the good ones aside into […]
[Continue reading...]Hannah stands!
20 Apr by
We finally got the temporary stander today. Ours is still “on order,” but after four months, they found one for us to borrow until ours comes in. Hannah took to it immediately! She stood over 15 minutes without any fuss or fight, which is a heck of a lot longer than she ever […]
[Continue reading...]A Mile Begins with the First Step
15 Apr by
We finally got Hannah’s leg braces in on Wednesday late afternoon. So we took them to physical therapy yesterday so we can start working with them. For the fourth session in a row (second at the clinic), Hannah had a FANTASTIC physical therapy session. She worked incredibly hard, didn’t throw a tantrum (until […]
[Continue reading...]Ten days until Disney!
14 Apr by
We have had so much going on lately that we haven’t really been putting much into getting ready for our trip to Disney World. I have my “to be packed” list, and I have been working with Apria about getting Hannah’s formula and oxygen being delivered to the Give Kids the World resort, as […]
[Continue reading...]No sedation!
13 Apr by
I was so thrilled that the peds nurse in the Radiology department was hung up with another child today because we were given the option to make an attempt at her abdominal CT without sedation. Hannah was exhausted, but I jumped at the opportunity. Worst case, it wouldn’t work, and we would just have to […]
[Continue reading...]Work before the fun
12 Apr by
We have a lot of things that we need to do before we go on our trip to Disney World in just 11 days! ELEVEN days! Yikes! Later this morning, we are going to go to the hospital so Hannah can get a sedated CT scan of her abdomen. I’m fearful that her […]
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