Anger – Anxiety – Abandonment. My triple A’s. I’ve been missing Hannah a lot this week. Some of it is because the kids started back to school, and I keep going back to how so damn close we were getting Hannah into school. Ethan and Abigail were so incredibly excited to have their little sister […]
[Continue reading...]Unexpected Pangs of Jealousy
1 Sep by
I came across this post written by a mom with a medically fragile child. “Top Ten exciting things about having a kid with a rare disease.” As I was reading her list, I started laughing and saying to myself “Yep!” to each one. I could totally relate to each one as I have lived each […]
[Continue reading...]Jumping into the Big Pond
28 Aug by
Next month, my husband and I are going to the first annual RARE Tribute to Champions of Hope Gala and the patient advocacy meeting they are hosting the next day. This will be a place where patient communities, like our Little Miss Hannah Foundation, can engage with each other and experts on various topics ranging from […]
[Continue reading...]Bring on the pain
16 Aug by
The kids go back to school in 11 days. This was such a crazy summer, and it was very much our most frugal one ever. But we are almost there. We did have some great times like visiting with friends in Northern California and Reno plus lots of shows on fillaseat.com as well […]
[Continue reading...]Our Rainbows to the Sky Event
1 Aug by
(click for event program) On July 25, 2012, the Little Miss Hannah Foundation launched ourselves into the Las Vegas community with our “Rainbows to the Sky” event, our first fundraiser and community event. DJ Miguel Guidos of Soli Concepts Entertainment kept the crowd going with great music, audience participation, raffles, and the highlight of the evening…three balloon […]
[Continue reading...]Happy Birthday Hannah
25 Jul by
Happy birthday, Hannah. I miss your smile, your wiggle, and that adorable little laugh of yours. Most of all, I miss your snuggles, cuddles, and just having you are my arms. Not having you hear with me hurts my heart, my soul. Daddy, Ethan, Abigail, and I miss you so much. ♥
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