Remembering Thanksgiving

This is where we were one year ago — what I would give just to have a few more minutes with her. But what I am thankful for is that I had three years with her. It was not enough, by any means, but it is more than some families get. She is my heart, […]

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How am I going to do this?

I am having the hardest time trying to psych myself up for the upcoming holidays. I used to love the holidays so much!  Decorating the house, putting out the decorations…we did it all from Halloween to Thanksgiving to Christmas and Hannukah. The kids and Daddy did the Halloween decorations this year.  I wanted nothing to […]

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The Empty Cemetery

Yesterday I went to visit Hannah at the cemetery.  I still go about once a week (unless there is heavy rain because it gets muddy).   I like to make sure her area is clean, her flower arrangements and holiday/seasonal decorations look good … you know, my sweet Hannah is always one of the prettiest […]

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Ladybug costume & DNR

The kids wanted to break out the Halloween decorations today.   It had always been a big thing when we lived in Texas, and the kids love to do up the front of the house. I had absolutely no interest. While going through the boxes in the garage, Abby found one of Hannah’s old costumes. […]

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Hannah is making her mark!

The Little Miss Hannah Foundation was awarded the Genzyme Patient Advocacy Leader 2012 Award for our school-involved World Rare Disease Day program! We were only one of 9 organizations world-wide to receive this honor along with a grant to help us expand our program.  We are very proud to receive this award for our Little Miss Hannah’s […]

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This time last year ….

We are coming up to the one year mark… I’ve always found myself doing the “this time last year with Hannah…” thing.  Trying to remember the good times, picturing her sweet little face. One year ago, there were no smiles.  Even worse, there would be no more smiles. It was the beginning of a month-long […]

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