Why a Simple Egg Means So Much

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“If you know someone who has lost a child, and you’re afraid to mention them because you think you might make them sad by reminding them that they died — you’re not reminding them. They didn’t forget they died. What you’re reminding them of is that you remembered that they lived, and that is a [...]

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Four months

She has been gone four months now. Today was a ROUGH day for me.   I have been in just a funk all day long. Even started crying at the restaurant at lunch … no clue where it came from, but it just started. I keep hoping that the 4th of each month will get [...]

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First laughs

Hannah at almost 4 months old

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To the Gaucher type 2/3 community

At least 5 to 7 times a week, someone finds Hannah’s blog by searching “Gaucher type 2″ or “Gaucher type 3″ or some variation thereof.   I used to get one to two emails a week from newly diagnosed families while Hannah was still alive. Since she passed away almost 4 months ago, I received [...]

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Big Sister Love

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I was cleaning up Abby’s room today, and I came across this letter she wrote to Hannah. Apparently, she writes to Hannah quite often.  I can tell by her conversations with me and the other letters she has written that she is still incredibly heartbroken.  But like me, she puts up a brave face. Last [...]

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Five stages of grief…yeah, right

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Every one of us is taught that there are five stages of grief.  I know I was. Denial to anger to depression to bargaining until you finally reach “the goal” of grief, which is acceptance. Maybe it is because my situation is unique or maybe because I am just wired differently than the rest of [...]

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